Drain My Vein

Pee jug.... round 2!

Stick it to me, nurse!

 










Today was lab day.  I did my second 24 hour urine collection from Sunday morning until this morning... yes the decorated cooler got a second 24 hours of use!  After doing the last collection in a 24 hour period I had to take it over to the lab and complete my blood draws.  If you remember from one of my previous posts I had to get a large quantity of vials filled for a couple of dozen different tests. 

I checked in with the lab receptionist and handed over my jug and then  took a seat in the waiting room.  Eventually the nurse called my name and directed me into the exam room where I have been getting all of my blood draws done.  She had a label sheet a mile long printed out for all of my vials, as well as lengthy instructions on what to do for the various bits of lab work.

Needle in.... vials filled.... and 16 tubes later I was done with the blood draw.  Easy breezy as always.  Next up she needed height and weight again, and then a "fresh" urine sample.  She sent me into the bathroom with a sani wipe kit and a sample cup as well as instructions on putting the sample cup into the door in the wall once I was done.  So in honor of chronicling every step of the way in this blog I included a picture of my sample in the wall.  Yes... I need to drink more water.  :(

16 vials of liquid Laura

Little box in the wall

So anyway today was a snap.  The next steps will happen this week.  I received a video in the mail that I need to watch and then I will have a psych evaluation done by one of the therapists that are on staff at the Colorado hospital.  I will take detailed notes on both so that all of you know what kind of information I am receiving.

For a little bit of fun.... I have been dog sitting for my parents this past week.  Here is my little buddy, Otis, who delights in dragging me down the block every time we go outside for a walk.  Don't let his size deceive you, this pupster is a strong one!

Otis the wonder dog

Radiate Me!

Early start to the day

Heading to the hospital

Today was the big testing day.  I was instructed to be at the hospital at 6:45 am to get all checked in at the Radiology department. 

Radiology department

Yet another waiting room!

First up for tests was a chest x-ray.  The nurses were nice enough to snap a couple of pictures of me getting the x-rays done.  For the x-ray I was posed in two different positions; a front view and a side view.  This was to check to make sure everything looked clear and good in my chest/lung area.  From gowning up to completion this took about two minutes.  Easy test!

Getting my chest x-ray

Side shot

Next on the agenda was my CT abdominal angiogram. I had an angiogram done about 10 years ago for my pancreas, so I kind of remembered what to expect, but I did have a feeling of anticipation about experiencing the icky feelings again.  If you have never had an angiogram I will explain.  You first get put through the CT scan machine several times to take pictures of your insides.  A recorded voice tells you when to take a breath and hold it, and when to release it.  The images are taken by a whirring, quickly revolving scanner that rotates around you as you go through the tube. 

Once that was done the nurse came back into the room and inserted an IV into my right arm.  Then my arms are put over my head and some chilly saline is shot into my body to test that the IV is working correctly.  Then the nurse leaves the room and a dye is injected through the IV.  The dye had to be shot very quickly through since this is a test that relies on speed for accurate results, so the impact of the dye is intense and immediate.  It is iodine based and causes your body to feel very warm from the inside out and makes you tingly.  For me it also made me very dizzy... the same way I feel right before I am about to pass out.  The warm (or rather HOT!) feeling started at my shoulder, shot through my throat and then immediately went to my groin.  It literally felt like I had wet my pants... which the nurse warned me about... but not to worry, it just feels that way, it does not actually  happen.  While this is happening the CT machine has started again and more pictures are taken.  The entire process - from the dye being injected to the completion is less than three minutes.  And the icky feeling is pretty short too.  By the time the nurse came back in the room to remove the IV I already felt better.

CT Scan Machine

In I go!

View from the top

Coming through!

Then the nurse was nice enough to let me come back into the room she was in and to view my kidneys on the computer screen.  Yup, I have two of them!  And all looks well!  Next off to get my EKG done.

My kidneys!



EKG...wired up!

I checked into the Cardio Eval department and then followed the nurse back into an exam room to get my EKG.  I have never had an EKG done before, and my only experience with them has been seeing the test done in movies.  To my surprise they no longer use the suction cups that I was used to seeing, instead they were small sticky tabs that they attached the alligator clips and wires to.  I had 10 wires attached to my chest and stomach, and then thirty seconds later the test was done.  The nurse handed me my EKG reading and snapped a picture.  She said everything looked great!

So the next step was to head down to the lab to get my next round of blood draws done.  This was going to be the biggie where they collected about a billion vials of blood.  When I checked into the lab I was told that unfortunately I had to come back Monday, as the 24 hour shipping requirement for my HLA tests could not be done on a Friday.  So they handed over my pee jug (for round two of collecting) and said "See ya Monday!"

So I'm almost there... the finish line is in sight...

The Short Walk

Papers and vials for the lab

Walking across the street to the clinic

 












It's testing day!  Today I had an appointment set to get my physical, EKG and chest x-ray.  My papers and blood vials had arrived in the mail earlier this week, so I packed everything up and headed across the street to my doctor's office.

Waiting room

Temp Taking

 











Once I got there my doctor's office informed me that there might be an issue with my getting the tests taken at their clinic.  The issue seemed to be with the billing and the fact that my doctor's office would not participate in third party billing.  Hmmmm.... their solution was to instead bill me and have me try to get reimbursed by the Colorado Hospital.  Clearly this was not going to work, especially since the billing instructions ask the testing clinic to cover 30% as a goodwill discount since this is a donation process.  I was asked to go sit in the waiting room while they tried to sort everything out.

Finally the nurse came to get me and told me they would go ahead with the physical since that was being billed to my own insurance, and they would keep me posted about the rest of the testing.


Blood Pressure



Reagan keeping me company



 

My physical consisted of getting my medical history and the following: allergies, height, weight, temp, blood pressure, heart and lungs check, ears, nose, throat check, and a check on my abdomen to make sure there were not any lumps or bumps.  I had already had my pap done two months prior, so it was not necessary to get that done again.

Once we were through with that we got a call from the billing department letting us know that I would need to go to the hospital for the rest of the testing, as my doctor's office would not do the necessary third party billing.  Frustrating?  A little.  But the good news was that once I sat down with the appointments gal, she was able to get me in tomorrow morning for the remainder of my tests. 

Getting my physical

Papers for the lab

 

So the line up for tomorrow:

- EKG

- Chest X-ray

- Abdominal Angiogram

- Dozens of blood tests

Bright and early.... 6:45 am appointment to get it all taken care of.  Then I will also be collecting another pee jug for my second 24 hour collection.  Good times!

More tomorrow....

And the Verdict Is.....

Anatomy of our innards

Success!  I received word from Colorado that according to my first round of labs that my kidneys are functioning normally.  Whew!  What a relief.  I guess I had never considered up until this point that there was a possibility that my kidneys might not be functioning normally.  What a kick in the pants that would have been, huh?  But thankfully it appears that all is well.

So anyway, I digress....  My secure message from the University of Colorado Hospital (sent via email), told me that I would have several more labs to do, an informational CD to watch and a social worker consult.  The next series of labs would be a bit more involved than what I had just participated in.  Here is what is on the agenda:

§  Laboratory Tests

        Albumin                         Creatinine                      CBC w/differential

            Alk Phos                       Glucose                         PT/PTT

            ALT(SGPT)                    LDH                              HIV

            AST(SGOT)                   Magnesium                   Hep B Surface Ag

            BUN                             Phosphorus                  Hep C Antibody

            Bilirubin-total                 Potassium                    EBV

            Calcium                        Protein-total                  Urinalysis

            Cholesterol                   Sodium                         Urine C&S

            CO2                              Uric Acid                       CMV IgG/IgM

            Hgb A1c

           

24 Hr urine for creatinine clearance and protein (2nd collection)

HLA/Crossmatch 

§  Health Maintenance Testing

           

1.  Pap smear for all females (within past year or repeat)

§  Consults

1.     History and Physical by Primary Care Physician

2.     Evaluation by Transplant Social Worker 

§  Other

1. Chest x-ray

2. EKG

        3. CT abdominal Angiogram -Clinical Question: Anatomy for Laparoscopic Kidney Donation.  Please include size of kidneys and dictate on bilateral vessels of kidneys.

Sounds like fun, right?!  So my physical is scheduled for Thursday of next week.  That will include the chest x-ray and the EKG.  The rest of my labs will be done at the hospital once I receive my many, many vials in the mail!  I am looking forward to watching the informational DVD that is being sent to me.  I have a feeling there are things that I have not even thought to wonder about. 

So until then, it is life as usual.  For a bit of fun, I attended a Brewer's game tonight with my friend Julie.  How cute are we?

Girls in a glove

A Jug Full of Fun



Getting ready for the big collection!

Putting it on ice...







So Sunday morning began my 24 hour collection.  Basically I had to stay close to my pee jug and cooler for 24 hours so that every time I needed to, um, go.... I would be near my supplies to collect it.  So a cooler full of ice and my jug sat ready and waiting in my bathroom at home.  I did take my jug on a brief tour of town and a visit to my parent's house...

At the hospital to drop off my jug!

Getting weighed

24 hours later it was time to take my jug to the hospital and turn it in.  While there I had to get weighed, measured and my blood drawn.  The nurse was awesome - best blood draw EVER!  I did not even feel the needle go in!  Then I was sent down to the ER to get my blood pressure taken.

Collecting a lil bit o' blood

Heading to the ER

At the ER the nurse was nice enough to take an interactive picture of me getting my blood pressure taken.  So this part of the testing is over.  On Wednesday I get to head back to the lab for my glucose tests.  Today's visit was short, sweet and totally pain free! 

Getting my BP

Visit to the Lab



Paperwork for the lab





Driving to the hospital



Today was the start of my labs process, the first steps in testing for kidney donation.  I printed out the forms that Vonnie from the University of Colorado Hospital had emailed me and drove over to the Fort Atkinson hospital to pick up my lab supplies. 



The first couple of tests in the kidney donation process include:

• 24 hour Urine for Creatinine Clearance and Protein (this includes a serum Creatinine for calculation)
• Oral Glucose Tolerance Test (Fasting Glucose and 2 hour glucose)
• Height
• Weight
• Blood Pressure

Fort Atkinson hospital

Entering the lab

I was picking up my "pee" jug today... a big jug that I would collect my urine in for 24 hours.  The contents of the jug will be analyzed in a Creatinine Clearance and Protein test.

The creatinine clearance test compares the level of creatinine in urine with the creatinine level in the blood. (Creatinine is a breakdown product of creatine, which is an important part of muscle.) The test helps provide information on kidney function.

Pee jug

My supplies

Got pee?

So this is what I am working with.... I will spare you photos of the collection process!  Anyway, this lab will be done this week and then next week I will be doing the glucose test.  Reallllllyy looking forward to that one!  If any of you have ever had a baby you have had to drink that nasty bottle of glucose gunk.  That is what I get to do for this test too.  I will certainly need lots of crossed fingers and prayers for that one!  More info soon! Love and hope.... ~LL





My Social Media Discovery

For anyone who doubts the power of social networking, let me be the first to tell you that you can accomplish ANYTHING if you network about it enough. 

What Started It All

On May 11th I was browsing through my news feed and saw a post by someone in La Crosse that I am friends with on FB.  Now, I do not actually know a lot of the people I am friends with on FB.  I use the site for marketing purposes for my agency and music clients, and more than likely added this person in La Crosse back when I had a show there for Ty Brown (star of The Bachelorette and Nashville country singer). 

The post said: "White chocolate mocha topped with whipped cream.  Thanks Starbucks."  Not super attention getting, right?  But the post underneath it was.  A woman named Roxanne Hamilton Guberud had posted a response, "Ann, you have over 800 friends... I am going to post this personal request... for all of you who spent money on expensive coffee this morning (and those who did not)... please consider donating to a good friend awaiting a kidney donor .  He needs a living donor and also funds."

My interest was piqued.  Who was this person who needed help?  And how bad was the problem?  I went to Roxanne's FB page and scrolled through her posts until I found a link to a news article.  Article  The article talked about a man named Michael Pastur who was originally from La Crosse, Wisconsin but now lived in Colorado.  The article described the rocky road that Michael has been on.  In the past 2 1/2 years he has been treated for two blood cancers, received a stem cell transplant, survived a heart attack and lost his kidney function.  He has kidney dialysis three days a week and was being placed on an active kidney transplant list.

Could I help? 

Quite possibly.  I wrote back to Roxanne asking for more information and to find out what blood type Michael needed.  It turned out that Michael could be matched with either type O or type B blood.  My blood type is B+ so I knew that I could be put into the running to be considered as a donor. To me it was a no brainer.  This man needs help.  I might be able to help him, so why not try?  I have always believed in being a donor and have donated platelets for over a decade now.  I also helped two families have babies by being an egg donor five years ago.  I knew a bit about kidney donation because my sister had looked into it a few months ago, and I knew that with  my ultra healthy lifestyle I would be an ideal donor. 

So what next?

I asked Roxanne to give me the information for the next steps.  She provided me with the donor team's information at the University of Denver Hospital and told me to get in touch with them, and also provided steps in the process that I could expect to go through.  So I placed the call to the team in Colorado and had them send me all of the paperwork to begin the screening process.  The forms were what you would expect: basic info, health questionnaire, family history, etc.  No surprises, nothing difficult.  I completed the forms, scanned them into my computer and sent them back to the donor team.  I received a call back letting me know that they were going over my information and would be in touch with me soon.  My blood type and health history all were perfect, but they needed to look at some other factors. 

The Verdict

I received a phone call from Colorado.  I was told that unfortunately I was too small to be a match for Michael.  What?  I have a healthy kidney here... what's the problem?  Apparently for kidney transplants to be successful the size of the organ needs to be a close match.  I am a small woman, short and thin, while Michael is a tall muscular man.  The size difference in our kidneys would have been a bad match and his body probably would have rejected it. Great.  So now what?

The Alternative

Well, now that my size has failed me, what were my other options to help Michael?  I hated for this to be the end of the road.  So I was presented with option number two, which is a Paired donation.  A paired donation is a sort of "pay it forward" kidney trade where one willing donor that does not match their own recipient gives to an unknown recipient who in turn has a willing donor who will match up with the first donor's recipient.  Everyone wins!  Okay, this sounds like a great option too.  Maybe even better... save two lives instead of one, right?  Yes.  I'm in.

So I gave Colorado the go ahead and they sent me my lab orders.  Next week I begin the actual physical process of all of this and do the labs to determine if I am approved as a donor.  I am experiencing a number of emotions right now, but mostly I feel hopeful anticipation that I will be able to complete this successfully and help save Michael's life.  How cool would that be?  So follow me in the next few weeks and I will do my best to chronicle this entire event, what I experience, how I feel, pictures, comments, the whole nine yards.  I want this to be a very interactive experience for everyone following me so that maybe someday YOU will consider being a donor too!

Love and hope....

~LL